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KMID : 0861220110130020071
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Journal of the Korean Society Clinical Neurophysiology
2011 Volume.13 No. 2 p.71 ~ p.79
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Establishment and Perspective of the Korean ALS Registry
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Sohn Eun-Hee
Kim Byung-Jo
Kim Jong-Kuk
Bae Jong-Seok
Paek Won-Ki
Suh Bum-Chun
Sung Jung-Joon
Ahn Suk-Won
Cho Joong-Yang
Hong Yoon-Ho
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Abstract
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Geographical differences in the incidence of amyotrophic lateral sclerosis (ALS) have been reported, and there are still many unresolved problems. The incidence as well as epidemiologic data of ALS is not known in Korea. Web-based multicenter registry of ALS, the Korean ALS registry, was established at January, 2011. The aim of “the Korean ALS registry” is the following: (1) to establish a database for the prospective collection of epidemiological information; (2) to assess the incidence and prevalence; (3) to find the temporal and geographic trends in the disease; (4) to define the full clinical spectrum of the disease; (5) to develop treatment guideline based on the database.
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KEYWORD
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Amyotrophic lateral sclerosis, Registry, Multicenter
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